Oncology State Societies Advocacy Resources

Advocacy Aimed at Improving Access and Outcomes in Cancer Care: To address policies and practices that affect patient care and access, the Oncology State Societies (OSS) leads a policy and advocacy program focused on legislation and regulations impacting patient care and provider access. OSS has expanded its reach by collaborating with local and national organizations and state lobbyists to prioritize key legislative issues.

The OSS policy program has helped establish a policy communication and learning infrastructure in 15 participating states with over 130 engaged multidisciplinary providers across the US, demonstrating the collective power available to drive meaningful change. By collaborating to address key policy issues, OSS members can have a tangible impact on improving patient care and quality of life for both patients and caregivers.

To learn more about your state’s policy committee, email Lu Anne Bankert at lbankert@accc-cancer.org.

Town Hall Executive Summary

OSS Policy Town Hall

In September 2024, the Oncology State Societies held a Policy Committee Town Hall Meeting that brought together oncology professionals, lobbyists, and state society leaders to discuss key legislative and advocacy priorities impacting oncology care across the US. There were 83 total attendees, including the ACCC President-Elect and 55 members across 18 State Societies.

Discussions focused on:

  • Bipartisan support for cancer initiatives
  • Challenges with Medicaid and pharmacy benefit manager (PBM) reforms
  • State-level advocacy efforts such as prior authorization and biomarker testing
  • Patient and provider story collections
  • Strategies for effective lobbying and coalition-building

Gain strategies to utilize local lobbyists, build effective coalitions, and collaborate with other states to advance key federal- and state-level legislation and advocacy priorities.

Download Summary

The Advocacy Engagement Report provides OSS members with comprehensive case studies on issues that galvanized state societies to act. The report documents the specific actions taken by different state policy committees to affect change.

Read the report to:

  • Unlock the 6 keys to successful grassroots advocacy as found in this effort.
  • Learn how states without governmental affairs resources leveraged the power of their membership and their committee expertise.
  • Benefit from lessons learned.
  • Gain inspiration from a nationwide effort across OSS members to effect change.

Download Report

Engaging in advocacy through our state societies is one of the most direct ways we can have a voice in healthcare policies impacting the care of our patients.

Haley M. Simpson, MD, PhD
Chair, Policy Committee, Rocky Mountain Oncology Society

Cancer Buzz Podcasts

Head and Neck Cancer: Understanding Gaps in Insurance Coverage


April 26, 2024

As April draws to a close, it remains crucial to acknowledge the significance of ensuring patients with head and neck cancer receive equitable care. Improving access to insurance coverage is an important step. According to the American Dental Association, nearly a quarter of adults aged 19-64 lack dental insurance. That figure skyrockets to 47% among Medicare beneficiaries. This stark contract in coverage disproportionately impacts marginalized communities, including Black, Hispanic, and lower-income individuals, further exacerbating health inequities.

Despite the widely recognized importance of dental care, its critical role in the treatment journey of patients with head and neck cancers is often underemphasized. As advancements in cancer therapy—particularly radiotherapy—continue to evolve, so too does the reliance on multidisciplinary teams, where dental professionals play an indispensable role. From pre-radiotherapy evaluations to post-treatment rehabilitation, dental care encompasses a spectrum of interventions crucial for optimizing treatment outcomes and preserving quality of life for patients with head and neck cancer.

However, the lack of insurance coverage poses a significant barrier as it impedes patient access to essential dental services which ultimately hinders treatment outcomes. As a result, understanding the essential dental services patients with head and neck cancer require is key. They include, but are not limited to:

  • Pre-radiotherapy Dental Evaluation and Clearance: Prior to starting radiotherapy, patients with head and neck cancers undergo a thorough dental evaluation to assess their oral health status. This evaluation includes dental extractions for teeth with poor prognosis and measures to maintain good oral hygiene, aiming to minimize the risk of treatment-related complications and ensure optimal oral health before initiating cancer therapy.
  • Management of Treatment-Related Complications: Radiotherapy for head and neck cancers can lead to various acute and chronic side effects, including oral mucositis, xerostomia (dry mouth), taste disturbances, and trismus (muscle spasms in temporomandibular joint). Dental care providers play a crucial role in managing these complications through pharmacological and non-pharmacological treatments.
  • Radiation Caries and Osteoradionecrosis Management: Patients undergoing radiotherapy are at risk of developing radiation caries and osteoradionecrosis. Dental restorative treatments for caries in irradiated teeth require careful management to prevent tooth loss. Advanced adhesive techniques and minimal invasive dentistry are employed to provide dental treatment for patients with radiation caries.
  • Prosthetic and Restorative Dentistry: Post-radiotherapy, patients with head and neck cancer may require oral rehabilitation to address missing teeth and restore oral function. Treatment options include removable partial dentures, fixed prosthesis, and dental implants with or without retained fixed or removable prostheses.
  • Regular Post-radiotherapy Review and Follow-up: After completing radiotherapy, patients with head and neck cancers require regular dental review appointments to monitor their oral health status and address any treatment-related complications. Patients are assessed for oral rehabilitation options, and decisions are made in their best interest.

Not only are these dental care needs vital for patients with head and neck cancer, but studies reveal higher survival rates from head and neck cancer when care is provided by a dedicated team that meets regularly. However, the logistical challenges of assembling such teams can be daunting, and the lack of insurance coverage can exacerbate these difficulties. These factors have created a positive correlation between the level of insurance coverage and patient survival rates. The image below illustrates this relationship: 

Source

The same factors influencing overall survival post-head and neck cancer diagnosis—insurance coverage and socioeconomic status—are also linked to a lack of dental coverage. While policymakers have previously endeavored to extend dental coverage to new patient populations, including Medicare, there is an urgent need for patients with head and neck cancer. Consequently, policymakers and advocates must collaborate to devise solutions to this access crisis. For developing initiatives to fix this problem is a major part of why the Association of Cancer Care Centers (ACCC) and other organizations continue to recognize April as Head and Neck Cancer Awareness Month.  

To find more tools and resources related to head and neck cancer, visit the head and neck cancer page.

ACCC’s Multidisciplinary Approaches to Head & Neck Cancer education program is made possible with support by EMD Serono. 

Our Supporter

Johnson-&-Johnson-460x80 

Participating States

TACOS-logo-200x90
RMOS-logo-200x90
HSCO-logo-250x266
IOS-IA-logo-200x90
Kentucky Society of Clinical Oncology Logo
LOS_v2_200px
MSCO-250x125
MOS-logo-200x90
NOS-logo-250x117
NMSCO-logo-190x60 
ESHOS-logo-200x90
NCOA-newlogo-220x100
TOPS-logo-250x117
SCOS-logo-200x90 
WAHO-385x247


1801 Research Boulevard Suite 400
Rockville, MD 20850
Tel: 301.984.9496 | Fax: 301.770.1949
tops-tennessee.com
Email Us