Oncology State Societies Advocacy Resources

Advocacy Aimed at Improving Access and Outcomes in Cancer Care: To address policies and practices that affect patient care and access, the Oncology State Societies (OSS) leads a policy and advocacy program focused on legislation and regulations impacting patient care and provider access. OSS has expanded its reach by collaborating with local and national organizations and state lobbyists to prioritize key legislative issues.

The OSS policy program has helped establish a policy communication and learning infrastructure in 15 participating states with over 130 engaged multidisciplinary providers across the US, demonstrating the collective power available to drive meaningful change. By collaborating to address key policy issues, OSS members can have a tangible impact on improving patient care and quality of life for both patients and caregivers.

To learn more about your state’s policy committee, email Lu Anne Bankert at lbankert@accc-cancer.org.

Town Hall Executive Summary

OSS Policy Town Hall

In September 2024, the Oncology State Societies held a Policy Committee Town Hall Meeting that brought together oncology professionals, lobbyists, and state society leaders to discuss key legislative and advocacy priorities impacting oncology care across the US. There were 83 total attendees, including the ACCC President-Elect and 55 members across 18 State Societies.

Discussions focused on:

  • Bipartisan support for cancer initiatives
  • Challenges with Medicaid and pharmacy benefit manager (PBM) reforms
  • State-level advocacy efforts such as prior authorization and biomarker testing
  • Patient and provider story collections
  • Strategies for effective lobbying and coalition-building

Gain strategies to utilize local lobbyists, build effective coalitions, and collaborate with other states to advance key federal- and state-level legislation and advocacy priorities.

Download Summary

The Advocacy Engagement Report provides OSS members with comprehensive case studies on issues that galvanized state societies to act. The report documents the specific actions taken by different state policy committees to affect change.

Read the report to:

  • Unlock the 6 keys to successful grassroots advocacy as found in this effort.
  • Learn how states without governmental affairs resources leveraged the power of their membership and their committee expertise.
  • Benefit from lessons learned.
  • Gain inspiration from a nationwide effort across OSS members to effect change.

Download Report

Engaging in advocacy through our state societies is one of the most direct ways we can have a voice in healthcare policies impacting the care of our patients.

Haley M. Simpson, MD, PhD
Chair, Policy Committee, Rocky Mountain Oncology Society

Cancer Buzz Podcasts

Tackling the Dental Coverage Gap: Empowering Patients with Head and Neck Cancer


May 23, 2024

For patients battling head and neck cancer, access to comprehensive dental care is not just about maintaining good oral health—it is a crucial component of their overall treatment and well-being. The multidisciplinary approach to treating head and neck cancer, involving various medical professionals alongside dentists, highlights the vital role of dental care in holistic patient management. From pre-treatment assessments to post-treatment rehabilitation, dentists are instrumental in minimizing the adverse effects of cancer therapies and ensuring better treatment outcomes.

Recent studies have revealed a correlation between access to dental care and survival rates among patients with head and neck cancer. Specialized dental services, including prosthodontics, management of treatment-induced side effects, and other general dental care needs of patients are integral for improving patient prognosis and quality of life. However, the lack of insurance coverage poses a significant barrier to accessing these vital services, particularly for vulnerable populations.

Considering these challenges, it is imperative for policymakers and advocates to take decisive action to address the dental access crisis facing patients with head and neck cancer. One notable initiative to increase patient access to dental care is spearheaded by the Massachusetts Oncology Patients, Survivors, and Supporters (MOPSS), which is working with the Massachusetts State Legislature to pass H.1094. The bill aims to make dental care accessible for survivors of head and neck cancer, providing coverage for dental care that is medically related. This effort has taken years of advocacy including patients and providers sharing their experiences and pushing for fair and equal coverage that is needed. As of April 3, 2024, the H.1094 was reported favorably in the Financial Services committee and referred to the committee on Health Care Financing. Progress on this legislation can be followed on the MOPSS website.

To build upon these efforts, at both the state and federal level, there are several key steps that can be taken to bridge this gap and ensure equitable access to dental care:

  • Policy Advocacy: Continuing to educate policymakers and raise awareness for the need for comprehensive dental coverage within existing healthcare programs, such as Medicare. Policymakers must recognize the integral role of dental care in overall health and prioritize initiatives that expand coverage to underserved populations.
  • Collaborative Initiatives: Multidisciplinary collaborations between healthcare providers, advocacy groups, and policymakers are essential for developing sustainable solutions to dental care access. By fostering dialogue and cooperation, stakeholders can identify innovative approaches to improve access to dental care for patients with head and neck cancer.

     

  • Community Outreach and Education: Raising awareness about the importance of dental care in cancer treatment and survivorship is crucial for empowering patients and caregivers to advocate for their needs. Community-based initiatives aimed at promoting oral health literacy and facilitating access to dental resources can help address barriers to care.

     

  • Financial Support Programs: Implementing financial assistance programs, such as subsidies for dental services, can help alleviate the financial burden associated with accessing dental care. These programs should be tailored to the specific needs of patients with head and neck cancer and prioritize affordability and accessibility.

     

  • Research and Innovation: Continued investment in research and innovation is essential for advancing dental care technologies and treatment modalities tailored to the unique needs of patients with cancer. By supporting research initiatives focused on improving dental outcomes in cancer care, policymakers can drive progress towards more effective and patient-centered solutions.

Looking Forward

Addressing the dental coverage gap for patients with head and neck cancer requires a multifaceted approach that encompasses policy advocacy, collaborative initiatives, community outreach, financial support, and research innovation. By working together towards these common goals, all patients can receive the comprehensive dental care they need to optimize their health outcomes and quality of life throughout their cancer journey.

To find more tools and resources related to head and neck cancer, visit the head and neck cancer page.

ACCC’s Multidisciplinary Approaches to Head & Neck Cancer education program is made possible with support by EMD Serono. 

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