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Chronic Lymphocytic Leukemia (CLL) Resources

Chronic lymphocytic leukemia is a cancer of the B-lymphocytes that may be found in bone marrow, blood, lymph nodes, the spleen, and other organs. Chronic lymphocytic leukemia is the most common form of leukemia in adults and accounts for one quarter of new leukemia cases annually. The average age at diagnosis is 70, and chronic lymphocytic leukemia is rarely seen in those under the age of 40. Considered a chronic disease, as it can persist for a long time and often reoccurs over the lifetime of the patient, chronic lymphocytic leukemia is less common than other types of cancers, accounting for just 1.2 percent of all cancers.

Featured Resources

Treatment for Double-Exposed Chronic Lymphocytic Leukemia

CLL_TreatmentGuideSheet_2024Managing chronic lymphocytic leukemia (CLL) after double exposure to Bruton’s tyrosine kinase (BTK) and B-cell leukemia/lymphoma 2 (BCL2) inhibitors requires a tailored approach. This guide provides considerations and strategies to optimize outcomes for these patients.
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Steps to Success: Integrating Oral Oncolytics into Chronic Lymphocytic Leukemia (CLL) Practice

ACCC PracticeGuide CLL CoverACCC’s Effective Practice Guide highlights case studies profiling effective practices in the integration of oral oncolytics into the cancer continuum. The case studies outline key roles, address specific challenges, and discuss current solutions and plans for oral oncolytic integration.
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Advancing Regional Care for Patients with Chronic Lymphocytic Leukemia Practice Profiles

Learn how three cancer programs use community outreach and other support strategies to improve care for underserved populations diagnosed with chronic lymphocytic leukemia. In this spotlight series, ACCC examines state and regional disparities and each program’s unique approach to overcome barriers and provide equitable chronic lymphocytic leukemia care.

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Publications

Multidisciplinary Chronic Lymphocytic Leukemia Care: Models of Effective Care Delivery

Chronic lymphocytic leukemia (CLL) is a heterogeneous disease, and a number of factors affect patients’ treatment options including age, overall health, whether the disease is high-risk for progression, and what symptom is being treated and why. This publication presents highlights of the current CLL treatment landscape and includes examples of effective delivery of patient-focused multidisciplinary care for patients with CLL across different care settings.

ACCC thanks the following Cancer Program Members for their contributions to this publication:

  • Self Regional Healthcare Cancer Center
    Greenwood, South Carolina
  • The University of Kansas Cancer Center
    Westwood, Kansas
  • Sunrise Hospital and Medical Center
    Las Vegas, Nevada
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Are We Speaking the Same Language? Insights from a Patient and Provider Survey on CLL

While treatment options have improved outcomes for patients with CLL, it is important to consider other aspects of the patient journey to gain insight as to how providers may better understand and serve their patients. ACCC conducted an educational initiative focused on gaining insights into the journey of patients with CLL by exploring conversations and perceptions of patients and providers across a broad spectrum of issues, including knowledge sharing and support on diagnosis and treatment, the use of telehealth, biomarkers, the impact of the COVID-19 pandemic on disease management, and quality of life (QOL).
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Multidisciplinary Chronic Lymphocytic Leukemia Care: Quality Improvement Case Studies

Three ACCC Cancer Program Members were selected to participate in custom-tailored quality improvement workshops. This publication highlights the quality improvement projects the participating ACCC Cancer Program Members developed as a result of the workshops. Learn about the various efforts of each site to improve care for patients with CLL in their respective settings—and during the COVID-19 pandemic.

Thank you to the following ACCC Cancer Program Member sites for their participation:

  • The Outer Banks Hospital, Nags Head, NC
  • Billings Clinic Cancer Center, Billings, MT
  • The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research Institute, Columbus, OH 
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Additional Resources

Post-COVID-19 CLL Resources

Managing chronic lymphocytic leukemia (CLL) can be challenging, even under normal circumstances. But in this unprecedented era of COVID-19, the challenges have multiplied. The patient resources below—brought to you by our partner, The Patient Empowerment Network—feature oncology leaders addressing the questions patients most frequently ask since the pandemic began.
Resource Library

Regional CLL Heat Maps

The following heat maps display chronic lymphocytic leukemia (CLL) incidence rates by state and metropolitan area and below them, institutions with specialization for treating CLL. The CLL heat map dashboard also displays the race/ethnicity of those diagnosed with CLL and households with access to broadband. To view instructions on how to use the CLL Heat Map, locate the tool bar at the bottom of the map and navigate to the second page. For supplemental reading, see the resource library available at the bottom of this page.
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Contact Us

For more information on any of these resources, please contact the ACCC Provider Education department.