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Sarcoma Education

Sarcoma is a relatively rare cancer in adults and accounts for less than 1% of new adult cancer diagnoses. Most sarcomas have no known cause, but a few risk factors have been identified, including a history of radiation therapy, a history of long-term lymphedema, certain genetic disorders, and exposure to certain chemicals.

Treatment for sarcoma often includes surgery in combination with radiation therapy and/or chemotherapy. In some situations, sarcoma may also be treated with newer targeted therapies or immunotherapy.

Because it is a rare cancer type, many health care providers may not have experience with diagnosing or caring for sarcoma patients. ACCC and its partner, the Sarcoma Foundation of America (SFA), are working together to help increase awareness about sarcoma and how to improve quality of care for patients and caregivers impacted by this type of cancer.

Sarcoma Resources for Providers and Patients

Explore this collection of resources from project partner Sarcoma Foundation of America (SFA), designed to enhance and support sarcoma cancer care. Resources are available for patients, caregivers, health care providers, social workers, patient advocates, and all members of the multidisciplinary care team.
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From the ACCCBuzz Blog

  • Rare but Treatable: Sarcoma Care in the Community Setting
    Nicole A. Colwell, MD and Brandi Felser, MBA
    December 11, 2024
    To facilitate the process of diagnosis, treatment, and patient care, SFA has partnered with ACCC to develop a multitude of resources about sarcoma for community clinicians, patients, and caregivers.

Cancer Buzz Podcast

  • Empowering Community Cancer Providers: Resources for Sarcoma Care – [Podcast] Ep 172
    Dec 20, 2024

    Raising awareness about sarcoma is essential to reducing treatment delays and preventing misdiagnoses of this rare cancer with over 100 subtypes. The Association of Cancer Care Centers (ACCC) is dedicated to providing up-to-date information on sarcoma management and the unique challenges associated with diagnosis and treatment in community settings. In this episode, CANCER BUZZ speaks with Richard Riedel, MD, professor of medicine at Duke Cancer Institute, to explore the critical resources needed for sarcoma care, including psychosocial support and the financial difficulties often faced by patients. Dr Riedel also discusses the future of treatment options in community-based settings and the importance of collaboration between community providers and academic/specialty centers. Additionally, CANCER BUZZ speaks with Katie Wintergerst, a sarcoma patient, who shares her personal journey and the challenges she encountered on her path to diagnosis.


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